Well we had Jackson's 4 month appt today. He weighs 18lbs 10oz, and is 27.5 inches long.
They measured his head, and it's off the charts which concerned our Ped. She said since he's been born at every appt (birth, 2mos, 4mos) his head has jumped up 2 lines on the percentile chart each time which is strange to her. She said this could just be that he's going to have a naturally big head or it could mean something else. He also still has a flat spot on one side of the back of his head which he favors to lay on, and he has a little Torticollis which means his head tilts more to one side sometimes and he doesn't hold it straight all of the time like he should. She wants us to go to physical therapy for the Torticollis but before that happens we have to figure out why his head is growing so fast... so he's sending us a referral to one of the top Neurosurgeons at CHOC... I just want him to be okay. I'm scared. I asked her what could cause the head growth and she said it could be a genetic thing (Mike and I both have large heads) but we have to just make sure. I pressed her on what else it could be, because I know she didn't want to tell me, and she said since I asked it could also be fluid in his head/brain that could be causing it BUT neurologically he was right on target with his development (cooing, laughing, grabbing, lifting his head etc...) so she said that is really good because if it's fluid along with the head growth, it could hold him back a little big developmentally so it's most likely he's just going to have a big head naturally, but we just have to make sure.
I'm sorry I know I shouldn't be freaking, chances are that everything is okay, I mean he is a huge kid anyways really long and weighs almost 19lbs, but to have to take him to a neurosurgeon at CHOC I am just scared.
She was going to try and put in the referral fast so we can get him in quickly, and we have to have all of our immediate family have their heads measured to see if genetically we are all above average and take that with us, and then if everything is okay, then we can go see another specialist about the Torticollis.
I'm scared. I just love him so much...
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5 comments:
Gotta love these specialist types who are concerned enough send you off for further testing but then won't tell you what they are looking for so not to scare you. They kinda lost the secrecy at about the point where they decided testing would be a good idea. :-/
I hope everything goes well and it is a lot of flapping about for nothing. It is scary when someone comes along and decides there might be a problem. But I guess this is part of parenting. Worry free existence kind of died the day we went..."oh, let's TTC".
Thinking of you - let us know how you go.
I'll be praying for you, Amy. A had to be admitted to CHOM at 5 months, and it was terrifying. Hopefully y'all just have big heads! Love you, Mama!
Oh Amy! I don't blame you for being worried! Hang in there! Lots of thoughts and prayers are headed your way!
It's ok that you are worrying. It shows just how much you love your son. When my first child was born the doctor told me that she had a heart murmur. This is the first time I had ever heard about a heart murmur. It scared the daylights out of me. It turns out that quite a few people in my family had heart murmurs. She out grew it within 6 months. Whenever there is a slight question mark the doctors HAVE to mention it. They do that because if there is a problem (which most of the time the baby is fine) they won't get sued. We'll keep Jackson and you in our prayers.
Hi
I am a lurker and never comment but my older daughter has been under a neurosurgeon for a known problem since birth. She has a significant neuro problem and I was terrified. Shes 17 now, got excellent grades at school and everything is fantastic in her life. When they are little these worries feel insurmountable, but really, Things DO turn out alright.
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