So we had Jackson's 6th month appointment today and he's 28inches long and 21pounds. He's above the 95th percentile for everything so he's totally perfect and at a healthy weight for his length (which the Dr said was really long ) I'm sure he's going to be really tall, my DH is almost 6'3! His head size went up a little bit but she said it's starting to come back down with the curve So we still have to see his neurosurgeon on the 25th for the follow-up, but she's sure everything will be fine with it's size!
She said she can tell that we have been working with him a ton on his head shape and that she can already see an improvement and it's starting to round back out again (although it's still off) she said that we probably won't need to do the helmet, but wants us to ask our neurosurgeon about it on the 25th... so IDK what he will say about it, hoping he thinks he won't need it!
Also kind of funny, she was checking his gums and I asked her if she felt any teeth because I thought I could see one under his gums and she said "oh no, no teeth here yet, not for a long long while probably!" No joke, 2.5 hours later he cut his first tooth His gums split open and there it is in all it's tiny white glory! So does that mean we have to brush it now??
We went to Jackson's Physical Therapy this morning (and then the fair, so I was away all day). It went pretty good, she showed us different ways to help stretch out his neck and strengthen it because of the Torticollis. She did a "measurement" and he only has a 10% tilt, which she said wasn't bad, but we still need to correct it. So we need to do the stretches and really get him to turn his head up and to the side to help neutralize it.
She also checked out his head shape and said it's misshapen (duh) we've been trying to work on it, but she said we should really think about getting him a helmet She said to talk more about it with our Pedi at our next appt and also to our Neurosurgeon at CHOC when we go back for his follow up on the 25th of this month. I know it will help his head, but I don't know why it makes me so sad if he will have to wear one! Just the combo of the Torticollis, and him having a massive head has all tied together causing the bad shape to his head.
If he gets the helmet, he has to wear it for 23hours a day, taking it off to bathe and clean it, and we have to go in every week or 2 to get it refitted to keep shaping his head back to normal I don't even know how long he would have to wear it for. We've been trying so hard to keep him on the left side of his head to even it out (and DH and I think there has been improvement) so we will see what our Pedi says when we see her for Jack's 6 months appt in a couple weeks.
The other thing that worries me is the cost of the helmet... the helmet and all the fittings are upward of $1,000+ and most insurance won't cover them, no idea why, I guess it's considered cosmetic?? IDK We don't have that kind of money just laying around right now so I'd have to ask my parents for help, which they would do in a heartbeat, but I just hate having to ask.
I don't know why I'm so sad for him if he has to wear the helmet. I don't want people making fun of him or anything, and I've even looked them up and babies actually look really cute in them and I know it's for the better..IDK I'm totally rambling, sorry for all of this, I just needed to get it out.
Welcome! I'm Amy, a late 20 something Polish-Italian Catholic dealing with infertility. I married the love of my life on May 24th 2008 and we decided to start trying for children on June 24th 2008. It's been a hard road, but we have been finally blessed with a positive pregnancy test on June 19th 2010, almost exactly 2 years to the day we started trying. I don't always censor myself on this blog. Read what you like or none at all...but this is my story about my "Miracle in the Making".
AF-Aunt Flo (Period) BD-baby dance BFN-big fat negative (the ‘f’ is translated loosely lol) BFP-big fat positive (HPT or OPK test result) CD-cycle day CM- cervical mucous CP- cervical position DH - dear husband DPO-days past ovulation FF-fertility friend FRER-First response early result HPT-home pregnancy test IB- implantation bleeding IPS- Imaginary Pregnancy Symptoms IUI-intra-uterine insemination IVF-in vitro fertilization O-ovulate OPK-ovulation predictor kit PCOS-polycystic ovarian syndrome POAS-pee on a stick (to take an HPT or OPK) RE-Reproductive Endocrinologist SA-semen analysis TTC - trying to conceive US-ultrasound 2WW-two week wait, the time between ovulation ‘o’ and AF